Added: Mar 10, 2009

From: realthomo

Duration: 2:54

I wrote this poem for my son. When my 4 year old son James was diagnosed with Duchenne Muscular Dystrophy, it tore our world apart and broke our hearts. We are now finding it easier to deal with his diagnosis, but it still hurts. There is no cure, the only way to find a cure is by raising awareness and money for much needed research. We are doing all we can to raise money - check out our site www.tourduchenne.com.

Channel: People

Tags: duchenne  muscular dystrophy  son  losing a child  parents  grieving 

Rating: 5.0' max='5' min='1' numRaters='7' rel='http://schemas.google.com/g/2005#overall ( ratings)    Views: 1696    Comments: 10

iangriff2007 Says:

Mar 10, 2009 - great vid, its a sad but very real emotional poem, well read out. I hope we find the cure too. Ian dmd sufferer.

mtamana Says:

Mar 10, 2009 - Oh sharyn...we will be beside you fighting all the way. I can't stop the tears!! Love you.xx

donatetocauses Says:

Mar 11, 2009 - Thanks for sharing with all of us! My 23 year old son Adam has Duchenne!

HyaFio Says:

Apr 2, 2009 - It sounded as if you were reading from my journal... you have touched me deeply with your poetry. Please know that we are holding your hand as you search and hope. Together we WILL make a difference. Much love, Hyacinth. DMD mother.

realthomo Says:

Apr 3, 2009 - Hi Hyacinth,Thank you for your lovely words about my poem. I actually wrote that poem in less than an hour - I had words running through my head for days leading up to it and managed to put it in writing so easily.How old is your son? Are you on PPMD? I have found that site to be so wonderful, and they have helped me along the road to dealing with my son's diagnosis.If you are on there, look me up - Sharyn Thompson.Hugs from one DMD mum to another.Sharyn x

EnaOline Says:

May 27, 2009 - my brother have duchennes. I hate this desease... :-(

DjChelan Says:

Nov 3, 2009 - Thank you so very much for your amazing beautiful poem. I needed this today as I spend my last few hours with our grandson before he moves far away from us to a warmer climate to help him be more comfortable. My heart is so heavy...for I love him with all my heart. Bless you and your family, Heidi

sqweebel Says:

Nov 9, 2009 - Thank you so much for sharing your poem. I am a Duchenne mom too, my son is 9. Someone is going to be in the right slice of history to be the first set of boys cured from this disease. Let us never lose hope that , that slice of history is now. xo

MrLilfrog Says:

Mar 16, 2010 - Thank you. we are DMD parents. Our Son was diagnosed in August last year at the tender age of only 9 months. Unlike your son, ours has two older siblings ... we knew something was up. Now we are still battling with the thought of letting them know that their baby brother has this muscle problem ... what to do?

svrivera31 Says:

Jul 4, 2010 - my son name s james too this video make me cry i dont have my son wit me but i cry 4 him everyday im spanish n my son look just like the one at the video i need him back wit me take guys

marshiedance Says:

Aug 16, 2010 - My 4 and a half year old Jasin was diagnosed with DMD just 3 short months ago. He is child no 3 of 4 siblings (2 girls, 2 boys). Our world has stopped moving...we saw multiple 'specialists' throughout the years as I knew there was something wrong, just couldn't pinpoint it. Finally after seeking yet another opinion, we got the answer we did not want to hear, 'Duchenne' they said. Hearing your poem was exactly how I feel, it was as if I had written it myself. My heart is with you, Vivian xxxx